Website and Data Usage Policies
The Canadian VirusSeq Data Portal (CVDP, also referred to as "the Portal") is an open-access data portal intended to facilitate access to Canadian SARS-CoV-2 sequences and associated non-sensitive metadata adhering to the FAIR Data principles. The Portal will manage and share limited contextual metadata and viral genome sequences among Canadian public health labs, researchers and other groups interested in accessing the data for surveillance, research, and innovation purposes. In doing so, it will complement the controlled-access platform developed by the National Microbiology Laboratory (NML).
The Portal will harmonize, validate, and automate submission to international databases and enable the creation of real-time dashboards that summarize the Canadian data contributions while facilitating exploration and access. The Data Portal is funded by Genome Canada.
The CVDP is not providing access to any personal data at the current time. If you are submitting sequences or metadata to the CVDP, do not include any data that could reveal the personal identity of the source.
COVID-19 is an emerging and rapidly evolving situation. To promote responsive, collaborative, research and public health surveillance, virus sequences and minimal metadata are released on the CVDP rapidly and should be considered draft and subject to change.
Beyond limited editorial and quality controls and some internal integrity checks, the quality and accuracy of the record are the responsibility of submitters, not of the CVDP. It is also the responsibility of submitters to ascertain that they have the right to submit the data. The CVDP team will work with submitters to provide feedback on metadata and sequence data to improve the overall quality and consistency of the data submitted.
Currently, the CVDP exclusively focuses on providing access to data types that do not constitute "personal data/information". These include:
- Consensus viral sequence
- Raw de-hosted viral sequences
- Contextual Metadata:
- Sample name — a unique identifier for each sequenced specimen
- Sample collected by — the name of the health authority that collected the original sample
- Sequence submitted by — the name of the health authority that generated the sequence
- Sample collection date — the date on which the sample was collected
- Country of origin — the country where the sample was collected.
- Province/Territory of origin — the province or territory where the sample was collected from
- Organism — the taxonomic name of the organism.
- Isolate — the identifier for the specific isolate (if an isolate was sequenced)
- Isolation source — the material sampled
- Host — the taxonomic name of the host
- Host disease — the name of the disease experienced by the host
- Host age — the age of the host at the time of sampling
- Host gender — the gender of the host at the time of sample collection
- Sequencing instrument — the make and model of the sequencing instrument used
- Assembly method — the name software method used to generate the consensus sequence.
Data users guidelines
Access to the data provided within the CVDP is provided in a completely open manner, and at no cost to members of the scientific community and other interested parties. Nevertheless, users are expected to follow the CVDP policy on Recognition of the work of data submitters. Users should not attempt to make use of the portal data to attempt to re-identify specific individuals. In the unlikely case you come across identifying data, please swiftly report the event, indicating the problematic dataset, at firstname.lastname@example.org.
Recognition of the work of the data submitters
You may use the data from the CVDP to author results obtained from your analyses of relevant data, provided that your published results acknowledge, as the original source of the data, CanCOGeN-VirusSeq, CPLHN and its members.
Proposed sentence: “The authors of the manuscript would like to acknowledge the original source of the data CanCOGeN-VirusSeq, CPLHN and its members.”
Please note that the data that is being shared is the work of many individuals and should be treated as unpublished data. If you wish to publish research using the data, contact us at email@example.com first to ensure that those who have generated the data can be involved in its analysis. You are responsible for making the best efforts to collaborate with representatives of the Originating Laboratory responsible for obtaining the specimen(s) and involve them in such analyses and further research using such Data.
The CVDP is designed to provide and encourage access within the scientific community to the most up-to-date and comprehensive COVID-19 viral sequencing data. Therefore, there are no restrictions on the use or distribution of the CVDP data. While we do not encourage this practice, some submitters may claim patent, copyright, or other intellectual property rights in all or a portion of the data they have submitted. The CVDP is not in a position to assess the validity of such claims and therefore cannot provide comment or unrestricted permission concerning the use, copying, or distribution of the information it contains.
The CVDP is committed to protecting the privacy and security of the personal information and data of its users to the greatest extent possible subject to Canada’s provincial/territorial and federal laws. Personal information is defined as information that can reasonably be used to identify an individual either alone or in combination with other available information. The CVDP will only use your personal information for specific and consented purposes. This policy will be maintained except in circumstances required by law to provide access, or in response to subpoenas or other legal instruments to authorize access to personal information. Except for these scenarios, personal information will not be shared outside of the CVDP and its associated personnel or contractors without your explicit consent. When collected, personal information will only be retained for as long as necessary to fulfil its purposes subject to the applicable Canadian legal requirements.
Purpose, use, and collection of information
The central purpose of this website and the CVDP is to facilitate scientific research by providing researchers and other interested parties a central access point to Canada-based COVID-19-related genomic data and certain associated contextual metadata.
Personal information is not required to view this website, although certain key features will require some personal information to function optimally. We may collect this personal information in the form of webforms in connection with your account and services provided to you. The level of information collected will also be subject to the type of services and account used. Providing us with your information where required is strictly voluntary. Any personal information collected will be appropriately protected through physical and electronic means such as password protection, and encryption.
By providing your personal information, you are consenting to its use for the purposes listed below:
- Communicate with you regarding our services such as a newsletter, event notification, or a change of policy,
- Provide you with a service (e.g., help data submission, data access),
- Communicate and troubleshoot with you regarding any CVDP website functionalities and or services.
- Internet Protocol (IP) address of the computer being used,
- Web pages requested,
- Referring web page,
- Browser used,
- Date and time of activities.
Distribution of information to third parties
This website uses ‘Cookies’. Cookies may collect information such as your email address, username, or keep track of pages visited and documents downloaded. The CVDP may use ‘cookies’ to deliver web content specific to a user’s interests or to keep users logged in when such a feature is enabled. You may choose to enable or disable cookies on this website, and such information will not be collected. Disabling cookies will not restrict your access to the CVDP website but may affect the normal functioning of various features.
Hyperlinks and other privacy policies
Right to be “forgotten”
Users may request the erasure/deletion of any personal information they have provided to the CVDP website. If possible, the CVDP website will work to promptly erase/delete this personal information, except for where required by law (e.g. for records for auditing records). To request the erasure/deletion of your personal information, you may contact us at firstname.lastname@example.org.
Your privacy and concerns are important to us. We welcome you to contact us with your comments, questions, complaints, and or suggestions about our policy or a privacy-related issue. Please contact us at email@example.com.
Data Submitters Guidelines
Individuals and organizations interested in submitting data to the CVDP must first apply for data submission authorization through firstname.lastname@example.org. Registration can be completed with an email of choice. Afterwards, a verification email will be sent to the user. Once authorized, users can upload data via an account provided to them. Through this account, users can review the status of submission and review or reattempt any failed submissions. More detailed instructions for data submission can be found post-registration.
Sensitive and or Identifiable Data
Submitters are responsible for not submitting any sensitive or personal information to the CVDP. “Dehosting” and other relevant risk mitigation procedures are recommended to minimize the risk of submitting any sensitive or identifiable data.
The CVDP operates a helpdesk based on a ticketing system. You may contact the helpdesk at email@example.com.